Image of presenter signing in front of a slide projected onto wall behind

CHARGE Syndrome Information Days

Posted on October 17, 2017June 2, 2022 by Stephen Sheppard

Athlone Institute of Technology was the location on Friday 13th and Saturday 14th October for our CHARGE Syndrome workshop and information days. Many thanks to Gail Deuce, a specialist teacher and expert in CHARGE Syndrome for a fantastic presentation and informative lecture. We had over 35 professionals in attendance on Friday and 11 families attended… Continue Reading CHARGE Syndrome Information Days

Deirdre on left and Heather on right are wearing red t-shirts and standing beside a large deafblind International sign

Report from Deafblind International European Conference 2017

Posted on September 19, 2017June 5, 2022 by Stephen Sheppard

Deirdre Leech (Deafblind Outreach Consultant) and Heather Colson-Osborne (Team Leader at Anne Sullivan Centre) were given the opportunity to represent Ireland at the 9th Deafblind International European Conference in Aalborg, Denmark in September 2018. The theme of the conference was “Touch of Closeness: Maintaining Social Connectedness” so all of the presentations revolved around topics relating… Continue Reading Report from Deafblind International European Conference 2017

Image of speaker Gail standing on stage holding microphone speaking to audience out of picture

Upcoming CHARGE Syndrome Workshop

Posted on July 28, 2017June 5, 2022 by as-admin

“Supporting individuals with CHARGE syndrome in educational and clinical settings” The Anne Sullivan Centre is pleased to announce that it will host a professional workshop on CHARGE syndrome on Friday, October 13, 2017 from 1-4pm at Athlone Institute of Technology . This should be of interest to all classroom teachers, visiting teachers, SNAs, Social Workers,… Continue Reading Upcoming CHARGE Syndrome Workshop

Image of front cover National Disability Inclusion Strategy document

National Disability Inclusion Strategy launched

Posted on July 14, 2017June 5, 2022 by as-admin

On July 14th 2017, Minister of State for Disability Finian Mc Grath launched a new National Disability Inclusion Strategy spanning 2017 to 2021. The Strategy will take a whole of Government approach to improving the lives of people with disabilities both in a practical sense, and also in creating the best possible opportunities for people with… Continue Reading National Disability Inclusion Strategy launched

Image of human cells under a microscope through a blue filter

The Importance of genetic testing in Usher Syndrome

Posted on July 2, 2017June 2, 2022 by as-admin

Genetic testing is the only way for people to get a definitive diagnosis of Usher Syndrome. A genetic confirmation of Usher Syndome is also necessary to be eligible to participate in gene-based clinical trials such as gene therapy. Learn more about about the latest research into Usher Syndrome here.

Image of participants running through a mucky river during a runamuck race

Runamuck for the Anne Sullivan Foundation

Posted on July 1, 2017June 5, 2022 by as-admin

Take on this year’s Runamuck for the Anne Sullivan Foundation – Ireland’s original and most popular off-road Fun & Run Challenge! Continue Reading Runamuck for the Anne Sullivan Foundation

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